Villager of Distinction: Trace Adkins

The Villager of Distinction accolade goes to a person or group that has done something remarkable or special for those with severe allergies. The latest recipient of this accolade is Trace Adkins, the renowned country music star. Let me explain ...

Tonight my wife and I watched the finale of Donald Trump's Celebrity Apprentice. We have watched the Apprentice occasionally during its run. At first I have to admit that the celebrity version of the show seemed to be ill-conceived, yet for some reason I was drawn in.

The basic premise was that celebrities would play the game in the normal fashion, but instead of getting 'hired' by Mr. Trump, they would win $250,000 for the charity of their choice.

Over the course of the game I was struck by the way Trace Adkins carried himself. The man of few words seldom spoke but when he did it was often very insightful and noteworthy.

It was only in the last few episodes that I realized that Trace was supporting FAAN!

Trace has a six year old daughter with severe food allergies. In the finale Trace told Mr. Trump that he was playing for the "3 million fathers" who send their children to school living in the fear that they may not come home. He spoke with a passion that was seldom seen from him during the game. Being one of those fathers I was deeply moved by the emotion behind his words.

Trace is receiving this accolade for two reasons. As you can see from the enclosed Google Trends chart, there was a significant spike in Google searches for 'food allergy' after the March 6 episode of the Apprentice. It was in that episode where Trace was project manager and was able to talk about about FAAN.

I am also acknowledging Trace for the way in which he carried himself as an ambassador for the allergy community. He played hard but always with integrity, and he never lost sight of his motivation for playing in the first place ... his six year old daughter who suffers from severe food allergies. Very touching.

Well done Trace!

Please note: You can support Trace and FAAN by purchasing "You're Gonna Miss This - Single" at iTunes ... all proceeds go to FAAN and the charity single is only on sale for two weeks!

Villagers of Distinction: Sara & Mike Shannon

The Villager of the Month accolade has gone to a person or group that has done something interesting or special for those with allergies. It has honoured several people but as I award this accolade this evening I am struggling with the title.

Let me explain ...

Today I posted about how I thought I almost received a peanut cookie at a café. Though I do not have any food allergies, I seem to be vicariously allergic to peanut through my daughter. I react to peanut with an urgency that would suggest I am allergic myself. It is downright scary to think that I could accidentally consume something that would cause a possibly fatal physiological response. It is scarier still to imagine my daughter have that same reaction.

Tonight Gina Clowes of Allergy Moms emailed me. She reminded me that my Villager of the Month accolade was again due and her nominees are an obvious recipient for any and all allergy-related accolades. My concern was that a 'Villager of the Month' accolade just didn't seem appropriate given all that they have been through, and all they have done for the allergy community.

Many of you will know the story of their daughter Sabrina. The best summary of the Shannons' dedication to their daughter is summed up by Allergic Living, "On that terrible last day of September 30, 2003, Sara had made this promise to her daughter: she would do everything possible to prevent another child from dying of anaphylaxis. That promise has become her mission."

Sara has followed through on that promise.

For those who have children with anaphylaxis, Sara and Mike should serve as your inspiration. Collectively, our worst fear is that we might someday lose our child to a fatal allergic reaction. The Shannon's have turned their tragic loss into triumph and proved that all you can do in life is make the most of any situation, no matter how dire.

Gina Clowes was one of the first people to ever comment on NoPeanutsPlease. She counseled me to think of those with allergy to things other than peanut, and highlighted the story of Sabrina and her parents. After Gina's post I lay awake at night for about a month and wondered if I would have the courage to follow in the Shannons' footsteps. In those initial days after our daughter's diagnosis the possibility of a fatal reaction were of course exaggerated in my mind.

Madeleine would cough at night and my immediate response was to rush in and make sure she was not having an allergic reaction. It sounds crazy ... and it was.

Over the ensuing year my thoughts have returned many times to the Shannons.

My pittance of an accolade cannot begin to demonstrate my respect and gratitude for what they have done. We live in Vancouver and when Madeleine goes to school in three years she will be safer than she would be if she entered school today. Because of the Shannons' support for bill M210 here in British Columbia there are new anaphylaxis policies in our schools. Though we did not secure a west coast version of Sabrina's law, the support of the Shannons gave credibility to the efforts of PACT.

Though I hope to never follow in their footsteps, I am deeply moved by their response to the tragic loss of their daughter. Though I cannot even fathom the loss of Madeleine, I would hope that I could have a fraction of the Shannons' courage.

In honour of Sara and Mike Shannon I have renamed my 'Village of the Month' award. Henceforth the accolade will be called 'Villagers of Distinction'. The word 'month' connotes a point in time. The Shannons have given so much to the allergy community that any accolade, no matter how small, requires an element of permanence. It is not melodramatic to say their through their efforts they have undoubtedly saved the lives of multiple children.

Their efforts in BC may even someday save Madeleine's life and that possibility alone makes me forever grateful for their courage and their contribution to the allergy community.

Thank you Sara and Mike. You are truly an inspiration.

Villager of the Month - Jen

The Villager of the Month accolade goes to a person or group that has done something interesting or special for those with allergies.

This month's winner is our neighbour, Jen. Our daughter was invited to her son's first birthday. A few weeks before the party Jen proactively reached out to ask for our Wacky Cake recipe. She then went a step further and told all of the other parents that there would be an allergic child at the birthday party and to avoid bringing peanut snacks.

How incredibly thoughtful!

Jen made four chocolate Wacky Cakes and as always, they were moist and flavourful. These cakes are hardly a sacrifice for anybody and are very helpful for those with severe food allergies. The cake was a hit with our daughter. I think she ate five pieces, though much of the cake seemed to be smeared on her face and her dress!

Just as the party was winding down, an incredible thing happened.

I was speaking with one of Jen's friends and I mentioned that the cake was nut and egg free. It turns out that she has anaphylaxis to peanut! She was very happy to learn that she could actually enjoy the cake with the rest of us.

This was a rare treat for Jen's friend and it was also a pleasant surprise for Jen as she was not aware of her friend's allergy. Consider it allergy karma! You just never know who is going to have an allergy in your circle of friends.

Other parents could really learn from Jen. She simply asked for a cake recipe, advised other parents to bring peanut-free snacks and ensured that whatever else she served was peanut free. She did not fear the allergy. She did not make us feel like she had to go out of her way. As a result we never felt like we were an inconvenience.

Though I did have to be careful of a few egg items on the buffet style party spread, our daughter was really just there to play with the other kids and to eat chocolate cake!

It Takes a Village to manage an allergy! Jen set a great example for parents looking to accommodate children with food allergies.

Villager of the Month - Summer 2007

This spring I started a new series called Villager of the Month. The intent is to recognize people and organizations who do special or interesting things to help those with food allergies. This month I have been featured in Allergic Living. I wrote an article about the theory behind this very concept and the reception has been great.

The latest recipient of the Villager accolade dovetails nicely with my post about the work that PACT had done with Bill M210 in B.C. The Food Allergy Initiative is a non-profit agency that raises funds toward the effective treatment and cure of food allergies. It also works to raise awareness of the seriousness of food allergy.

In August the FAI was a major force behind New York Governor Elloit Spitzer's decision to sign into the law the Allergy & Anaphylaxis Management Act of 2007 (AAMA) . The FAI's contribution was significant. "During the past year, FAI led a coalition of food allergy support groups and parents across New York State to achieve the passage of the AAMA. In March 2007, as a result of FAI’s leadership of a coalition in New Jersey, a similar bill, PL. 2007, c.57, was signed into law."

“This vital legislation will save lives,” said Robert Pacenza, Executive Director, FAI. “If a food-allergic child accidentally ingests even a minuscule trace of the wrong food, it can trigger a reaction that can kill within minutes. The AAMA will provide New York parents and schools with sensible guidelines to help keep these kids safe. FAI is proud to have been the organizing force behind this effort.”

Congratulations Robert and team. Great work on this legislation!

Villager of the Month - June 2007

This spring I started a new series called Villager of the Month. The intent is to recognize people who do special or interesting things to help those with food allergies.

For June 2007 I wanted to recognize the efforts of a group of concerned parents in British Columbia. Under the name Protecting Allergic Children Today (PACT), Caroline Posynick and other members of her organization spearheaded a letter writing campaign to MLAs and government officials in support of David Cubberly’s proposed anaphylaxis legislation.

Though Bill M210 failed to advance after its second reading, the government is certainly aware of the issue of allergic children in schools and that is largely due to the efforts of PACT and its supporters.

You can learn more about PACT or Bill M210 on the organization's website.

Villager Of The Month - May 2007

This week was Food Allergy Awareness Week. In honour of this FAAN initiative, I have decided to add novel content to the the blogosphere. Earlier tonight I posted the announcement of my new "NoPeanuts Site Reviews" series.

The second addition to the site will be the Villager of the Month 'accolades'. You have seen the phrase "It Takes A Village" used on this site to refer to the fact that parents of allergic children cannot manage the allergy entirely on their own. Other people will at times relied upon in an emergency situation. Teachers, caregivers and friend alike could find themselves in this situation while the child is under their care.

Intended as a 'thank you' on behalf of the food allergy community, the 'Villager of the Month' will have done something interesting, special or courageous to help those with food allergies. I encourage my visitors to nominate people by posting comments or emailing me (address is in my profile).

In honour of FAANs initiative this week, I decided name my first Villager Of The Month (for May 2007) based on the contribution they made to Food Allergy Awareness Week.

One contributor was the Elliott family in Nevada who chose this week to launch their new line of products under the NoNuttin' brand.

I also thought it was pretty cool for a 13 year old in PA to write to her local editor and promote Food Allergy Awareness Week with a personal letter. In our own way we can all make a meaningful contribution.

Gina Clowes of AllergyMoms posted a list of great ideas of things you could do to make a difference this week.

Villager of the Month
The first recipient of the Villager of the Month accolade is Ria Sharon of CheckMyTag. I have seen Ria everywhere this week. I visit many sites in my 'rounds' and over the past two weeks I have noticed numerous cases of Ria posting comments promoting Food Allergy Awareness Week. She also posted a great collection of stories about food allergy on her blog, stories she collected from other bloggers and friends specifically for this occasion. Her efforts were creative and made a valuable contribution to food allergy awareness. Ria has a line of alert products for allergic kids. The business is about a year old and was started after her 13-month-old had an anaphylactic reaction.

Congratulations and thank you Ria!